Resources For Parents Who Have Children With Down Syndrome

Down Syndrome Connections Las Vegas:

downsyndromeconnections.org

Down Syndrome Organization of Southern Nevada:

http://www.dsosn.org

Gigi’s Playhouse Down Syndrome Achievement Center Las Vegas: https://gigisplayhouse.org/lasvegas/

Pahrump Disability Outreach Program:

http://www.pdop.info/

Down Syndrome Network of Northern NV:

http://www.dsnnn.org/

  What I Wish I Knew: 

http://downsyndromepregnancy.org/25-things-i-wish-theyd-told-me-in-the-hospital-when-my-son-was-diagnosed-with-down-syndrome/

National Down Syndrome Society:

An Updated Prenatal Testing Pamphlet About Down Syndrome For Pregnant Women And New Parents | National Down Syndrome Society (NDSS)

Down Syndrome Diagnosis Network (an international group of parents supporting parents with subgroups to support various medical conditions, both common and uncommon, in children with Down syndrome):

https://www.dsdiagnosisnetwork.org/

Down Syndrome Pregnancy

https://downsyndromepregnancy.org

Genetic Support Foundation (free resources and counseling to understand your genetic testing results)

https://geneticsupportfoundation.org/patients/

Down Syndrome Diagnosis Network (DSDN is a national network that specializes in early parent support):

Down Syndrome Support | DSDN Down Syndrome Diagnosis Network | United States

Delivering a prenatal diagnosis: A video from Dr. Brian Skotko, Director of the Adult Down Syndrome Center in Aurora IL and expert caregiver to people with Down syndrome and their families: https://www.youtube.com/watch?v=LCGduKA9f18

7 Strategies for Communicating Unexpected News: https://jacksbasket.org/curriculum/

Training for doctor/med professional delivering diagnosis (CME credit, training provided by Lettercase):

https://www.lettercase.org/pht-206-understanding-disability-and-best-practices-for-communicating-a-diagnosis/

Nevada has a robust system of early intervention services that assist families and their children, ages 0-3, with Down syndrome. To find out more about Early Intervention, please visit: https://dhhs.nv.gov/programs/idea/early_intervention_programs/